Our Mission

To raise awareness and understanding of the rare disease Moyamoya;
To provide support and resourcing in terms of information to Moyamoya Disease patients and their families;
To work towards providing limited financial assistance on a single payment basis to patients of Moyamoya Disease or their primary carer.

Organisations

Australia

Overseas

National Rehabilitation Information Center (NARIC)
8201 Corporate Drive, Suite 600 Landover, MD 20785 
301-459-5900, 301-459-5984 (TTY)800-346-2742

National  Organization for Rare Disorders (NORD)
P.O. Box 1968 (55 Kenosia Avenue) Danbury, CT 06813-1968 
203-744-0100 Voice Mail 800-999-NORD (6673)

World Moyamoya Day

World Moyamoya Day is on 6 May each year, when we get together to raise awareness and understanding of those affected by Moyamoya Disease, and we try and share our stories with the wider community. 

If you would like to know more about World Moyamoya Day, you can check out the Facebook group.

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