To raise awareness and understanding of the rare disease Moyamoya;
To provide support and resourcing in terms of information to Moyamoya Disease patients and their families;
To work towards providing limited financial assistance on a single payment basis to patients of Moyamoya Disease or their primary carer.
National Rehabilitation Information Center (NARIC)
8201 Corporate Drive, Suite 600 Landover, MD 20785
301-459-5900, 301-459-5984 (TTY)800-346-2742
National Organization for Rare Disorders (NORD)
P.O. Box 1968 (55 Kenosia Avenue) Danbury, CT 06813-1968
203-744-0100 Voice Mail 800-999-NORD (6673)
If you would like to know more about World Moyamoya Day, you can check out the Facebook group.