Get to know us and our warriors!

About Us

Our Warriors Stories

Moyamoya Disease affects a wide range of people, from people with a disability, to those who have lived much of their lives without even knowing that they have this progressive disease. Many children have Moyamoya Disease, and it is very clear that Strokes and other symptoms of this disease can happen to anyone, no matter how old they are.

Here are some of our warriors stories

How Moyamoya Australia Began

Nicola Baker established Moyamoya Australia, after her 19 year old son is afflicted with Moyamoya Disease. Jed had his first stroke from this disease at just 11 months old, which affects one in 100,000 and there is very little known about it.

Nicola established the foundation to provide information, support, and networking to those families who are dealing with this disease. Moyamoya Australia offers funding to families to help with some of the costs associated with having a chronically ill family member.

Moyamoya Australia have also gifted substantially to Macquarie University Neurosciences to assist in training and research of this disease.

Our Awards

We have worked very hard to spread the word about Moyamoya. It has been an amazing journey that has let us met new people and win awards.

Our Media Coverage

Throughout the growth and development of Moyamoya Australia we have been in the paper a number of time telling our stories and spreading the word!