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Get in touch
Phone Nicola Baker- (+61) 417 929 382
Email – info@moyamoyaaustralia.org.au
PO Box – PO Box 773, Ravenshoe QLD 4888
Contact Us
Phone Nicola Baker- (+61) 417 929 382
Email – info@moyamoyaaustralia.org.au
PO Box – PO Box 773, Ravenshoe QLD 4888
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Yes, there are several support groups and organizations that provide resources and connect patients and families, such as:
Families can support their loved one by:
Recovery from surgery can be different from patient to patient. Children tend to take longer to have their blood flow reestablished because they are often only able to receive an indirect bypass, however adults, because they are bigger, can usually be offered a direct bypass. The direct pathway does heal quickly, however the indirect method can take some months for that blood flow to be restored.
Diagnosis typically involves:
Moyamoya Disease is a rare, progressive cerebrovascular disorder caused by blocked arteries at the base of the brain, leading to the development of tiny, fragile blood vessels that can rupture, causing strokes or bleeding.
Yes, with appropriate medical management and accommodations, children with Moyamoya Disease can attend school. It is essential to inform the school about the condition and any specific needs or precautions.
In case of an emergency, such as a stroke or seizure, call emergency services immediately (000 in Australia) and provide clear information about the patient’s Moyamoya diagnosis.
The prognosis varies based on the severity of the disease and the timeliness of treatment. Early diagnosis and intervention can significantly improve outcomes and reduce the risk of recurrent strokes.
Treatment may include:
Symptoms can include:
Patients are advised to:
While Moyamoya Australia may not directly provide financial assistance, they can offer guidance on accessing financial support and resources through government programs, charities, and other organizations.
Absolutely. Donations are crucial for supporting their initiatives and helping those affected by Moyamoya Disease. You can donate through their website or by contacting them directly.
You can contact Moyamoya Australia via:
You can get involved by:
Stay updated by:
Moyamoya Australia can help connect you with experienced neurologists, neurosurgeons, and other healthcare providers who specialize in treating Moyamoya Disease. Contact them for recommendations and guidance.
Moyamoya Australia offers:
Moyamoya Australia is an organization dedicated to supporting individuals affected by Moyamoya Disease, raising awareness, and providing resources and advocacy for patients and families in Australia.
The unexpected happened in 2005– when Emily suddenly developed symptoms such as trouble forming words and loss of connection with her right hand. Emily Jones or Emily Pip as she ...
When Shannon and Joe’s eldest child, Connor, was 9 years old, their family’s life completely changed when he was diagnosed with Moyamoya disease. Connor, who also has Down Syndrome ...
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Little Lakyn Pratt was only 8-months-old when he experienced his first stroke. Receiving the news is a moment Mum Mikaela will never forget.
“Lakyn had just woken up from an afternoon ...