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Get in touch
Phone Nicola Baker- (+61) 417 929 382
Email – info@moyamoyaaustralia.org.au
PO Box – PO Box 773, Ravenshoe QLD 4888
Contact Us
Phone Nicola Baker- (+61) 417 929 382
Email – info@moyamoyaaustralia.org.au
PO Box – PO Box 773, Ravenshoe QLD 4888
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Yes, with appropriate medical management and accommodations, children with Moyamoya Disease can attend school. It is essential to inform the school about the condition and any specific needs or precautions.
Recovery from surgery can be different from patient to patient.Ā Children tend to take longer to have their blood flow reestablished because they are often only able to receive an indirect bypass, however adults, because they are bigger, can usually be offered a direct bypass.Ā The direct pathway does heal quickly, however the indirect method can take some months for that blood flow to be restored.
Patients are advised to:
Families can support their loved one by:
In case of an emergency, such as a stroke or seizure, call emergency services immediately (000 in Australia) and provide clear information about the patient’s Moyamoya diagnosis.
Yes, there are several support groups and organizations that provide resources and connect patients and families, such as:
Moyamoya Disease is a rare, progressive cerebrovascular disorder caused by blocked arteries at the base of the brain, leading to the development of tiny, fragile blood vessels that can rupture, causing strokes or bleeding.
Symptoms can include:
Treatment may include:
Diagnosis typically involves:
The prognosis varies based on the severity of the disease and the timeliness of treatment. Early diagnosis and intervention can significantly improve outcomes and reduce the risk of recurrent strokes.
You can get involved by:
Moyamoya Australia is an organization dedicated to supporting individuals affected by Moyamoya Disease, raising awareness, and providing resources and advocacy for patients and families in Australia.
Moyamoya Australia can help connect you with experienced neurologists, neurosurgeons, and other healthcare providers who specialize in treating Moyamoya Disease. Contact them for recommendations and guidance.
Moyamoya Australia offers:
You can contact Moyamoya Australia via:
While Moyamoya Australia may not directly provide financial assistance, they can offer guidance on accessing financial support and resources through government programs, charities, and other organizations.
Stay updated by:
Absolutely. Donations are crucial for supporting their initiatives and helping those affected by Moyamoya Disease. You can donate through their website or by contacting them directly.
The unexpected happened in 2005ā when Emily suddenly developed symptoms such as trouble forming words and loss of connection with her right hand. Emily Jones or Emily Pip as she ...
When Shannon and Joeās eldest child, Connor, was 9 years old, their familyās life completely changed when he was diagnosed with Moyamoya disease. Connor, who also has Down Syndrome ...
Jed's story is full of extremes, from a diagnosis of a rare disease, to the highs of meeting one of Hollywoodās favourite characters, and then to the crashing lows of losing a friend in the most ...
Little Lakyn Pratt was only 8-months-old when he experienced his first stroke. Receiving the news is a moment Mum Mikaela will never forget.
āLakyn had just woken up from an afternoon ...